Living with Genetic Disorder - The Impact of Neurofibromatosis 1 - Hardback - 1999

Chronicles experiences of adults with neurofibromatosis 1, a condition misdiagnosed for many years as The Elephant Mans Disease. The author examines the psychosocial costs of this misdiagnosis and the medias portrayal of The Elephant Man, and suggests improvements for care.
Year of publication: 1999
Pagination: 216 pages, appendices, references, index
Format: Hardback